Everyday we ask Charlotte to drink 900 mls. of Pediasure. Since her surgery, her typical intake has been between 650 and 750. The rest goes in by tube.
The exciting part, until today, has been that we only use the pump about twice a week. We've been able to do bolus syringe feeds. And her vomiting is way down--she'll go 3 to 5 days at a stretch without a vomit. Solid food is a bit more iffy--sometimes she'll eat 2 tablespoons at a time, sometimes nothing. Sometimes she chews, sometimes she hoards.
And then there is today, June 1, 2007. Remember it well. Charlotte drank 800 mls. total today. She finished 2 entire meals! And, she ate 3 tablespoons of pureed pineapple for breakfast.
A banner day!
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In January 2005, our unborn child was diagnosed with Truncus Arteriosus, an uncommon, complex heart defect. On May 9, 2005, our daughter Charlotte was born (4 weeks early). This is the diary, and continuing updates of Charlotte's journey through her first surgery to life as a regular kid (we'll get there one day).
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1 comment:
That's awesome!! WTG Charolotte! You are on your way to being a MicKey Graduate!!
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